so....

We came home from the hospital Friday afternoon.

This week we have our appointment to follow up on the seizures on Wednesday at 1:45. Then on Thursday we have the appointment with the nuero-surgeon. Hopefully by this point we will have more answers as to when and how they will do the surgery. That's all for now.

Thanks for loving and caring for our baby girl too.

CT scan update

Ok so the neurologist just came in. He said that the results of the scan are that the top plates in Kenzees head are fused together too early. So he will be referring us to neuro-surgeon. It sounds like they will be doing surgery to open the plates up. Because if they don't do this the head will elongate and put pressure on the brain.

Also today the OT came in and said that she is swallowing ok and just to watch it. They will follow up with us outpatient also to make sure things stay going well.

The dietician also came in to make sure she was eating well. The good new is she is putting on weight well. Since she was born she has put on 24 grams aday. Since she started the new formula she is putting on 74 grams aday. Chunky Baby!!! I love it!!! So they are happy about that.

I think that is all for now.

We are staying another night because the seizures haven't stopped as much as they want. So they are going to put an IV in her to give her the seizure medicine directly into her vein. Hopefully that will work so it's more direct to her.

Thanks for the prayers and good thoughts.

As of today

So since we have been in the hospital...MRI came back normal, 5 hour long EGG came back with misfiring in the left temporal lobe. So that means Kenzee is having seizure activity and minor seizures. The neurologist started Keppra to stop the seizures. They are going to request an Occupational Therapist to come in and watch her swallow since she isnt swallowing well when she eats. They are also ordering a CAT scan to look at the plates in her head to see if they are fusing together already.

Thank you for the prayers and wonerful thoughts.

Heres to catching you up

On July 12 Makenzee Jayne was born at 11:29 pm. She weighed 6 pounds 13 ounces. Everything was good!!!!



Within in a few days Kenzee strated getting crankier and crankier. She was screaming anytime she was awake. We went to our pediatrician and she said she had colic. Well the crying was all day and REALLY bad. So we went to the ER they did blood work up and sent us home and told us to check in with our dr the next day. We checked in with the dr at our office and he said she has GERD and started her on Zantac. He also wanted to try no milk proteins in mom's diet since I was nursing. Then on July 29th the hospital called us back and said some of the blood results came back questionable. So they admitted her to the hospital to watch her. By the end of the week things were looking better.

On August 10 they changed her medicine to prevacid. A couple days later they decided that the amount of issues she has been having leads them to believe she is allergic to moms breast milk so they took her off of it and put her on Nutrimagin and started adding rice cereal to help keep it all down.

On August 18 we finally saw a GI doctor because our pediatrician felt it was more than they could handle. She changed the formula to EleCare which is really expensive about $30 to $50 a can. Because of the reflux they want her staying at least a 30 degree angle all the time. She seems to be doing better now with this.

She also has developed possible seizures so the GI dr referred us to a neurologist. He ordered a MRI and an EEG. The MRI cause she has a knot on the back of her head that was of concern and the EEG for the tremors she is having.

Kenzee ended up having a few bigger tremors on Monday and Tuesday of this week which were or concern to the neurologist. So he admitted her into the hospital.